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Living with a Chronic Disease

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Living with a Chronic Disease

Living with a Chronic Disease

Hello, so yeah. Um, I have Ulcerative Colitis. I’m making a vlogbrothers video about it right now, from the perspective of people who don’t have Inflammatory Bowel Disease, but for people who do and for people who have other chronic diseases to a lesser extent, I wanted to make a video. I’ve been asked for […]

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I’m 23 & Turning To Stone: Living Differently

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I’m 23 & Turning To Stone: Living Differently

I’m 23 & Turning To Stone: Living Differently

It is a rare, genetic condition. It turns muscle tissue into bone, essentially causing me to grow a second skeleton. My shoulders and neck, my jaw and my hip affect me the most. My right hip is locked, um, so I stand like a flamingo but my foot doesn’t reach the ground all the way, […]

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