– My TPN officially started,
and PICC line officially in. (lively music) Good Wednesday morning, everyone. It is 5:30 a.m. just had some medication. Had my vitals taken, and
when I woke up this morning I immediately felt like,
what’s going on today? Something is definitely happening. And then I remembered
this morning I’m getting a PICC line placed so I can start TPN, and that will happen as soon as a special IV team arrives this morning. It is now six a.m. and
I had to get another peripheral stick for blood work, because my port is still being
finicky about blood return. And blood return is
important because it tells us that my central line is working properly, and the needle’s in the right place, but if you all remember a few weeks ago I had a port dye study done
because of this problem, and it just showed the catheter,
the port that’s inside me, is sometimes getting stuck
against the vessel wall, And it’s not dangerous. There’s nothing for us to do about it. It’s just gonna be annoying sometimes and I’ll have inconsistent blood return. So that’s another added bonus
of getting the PICC line while I’m here in the hospital. I need it for TPN anyways, but we can also use it for blood work, especially since I’m
getting blood work done so often here in the hospital,
I won’t need so many sticks. I fell back asleep for a
little bit, which surprises me because I’m actually pretty nervous about getting my PICC line placed. It’s really not something
I wanna have to do. Because I’ve never had a PICC before. Back when we had my port
placed in December of 2016, what we did is I trialed the IV therapy for two months with peripheral IV’s, and when we knew the treatment
was going to benefit me we just placed the port, ’cause ports are more
so like long-term use, and PICC lines are more temporary, and we knew the IV therapy was gonna be a long term treatment for me, so I’ve never had a PICC. And today they’re coming
to place it at bedside while I’m awake, and I don’t know, that makes me kind of nervous,
but my doctors have told me it is relatively quick,
simple, and painless and they will be giving me
some medicine beforehand to help me calm down, which I appreciate. And the intention is to
only keep the PICC in for the duration of my hospital stay, because between the infection
in my feeding tube stoma that is slowly clearing up, and the side effects from
the harsh IV antibiotic I have to be on to
clear up said infection, I just can’t tolerate my feeds enough to get adequate calories and nutrition. And I need adequate nutrition in order to fight this
infection and recover well. And lastly, as I mentioned
in yesterday’s vlog, this hospital prefers to
run TPN through a PICC line rather than a port, and TPN is where you receive nutrition intravenously. Okay y’all it is almost time for me to have my PICC
placement done, still nervous. And someone from the IV
team came and talked to me. They’re either going to
place it here at bedside or I might be going down to interventional radiology for placement. Either way, I’m getting it placed soon and the person who came
in and talked to me let me ask all the questions I had, and he was very knowledgeable, so that helped build up my
confidence in this whole thing, and I’ve got Ellie here for moral support. Let’s do this. (lively music) The room behind me is
interventional radiology, where I had my PICC line placed. It was successful. And Ellie got to go back with me too. Still a little bit groggy from
the medication they gave me. They gave me Versed which is a sedative to make people calm and sleepy and because of my Ehlers Danlos Syndrome I metabolize it very quickly. The max they usually
give is two milligrams but they had to give me
four to see any effect, but everyone was very
kind and knowledgeable and it really didn’t hurt at all. Went well. And this is what I was
talking about, the two lumens, so one of those lines will
be dedicated to TPN only, and the other one will be
for like blood work, IV meds, my IV antibiotic, whatever else we need. And this dressing is sterile. Everything with the PICC line is sterile, just like we do sterile
protocol with my port. And Ellie and I are just waiting
to go back up to our room. (lively music) Look who’s here! Perfect surprise for
getting back to the room. I’m just going back and
forth ’cause I love y’all. – [Judd] Now you have two central lines. – Okay, yes but we are
going to de-access my port so we only have one central line in use, less risk of infection. And these are the two lumens,
one is dedicated to TPN, and the other one will be
dedicated to blood draws, my IV antibiotic, my other IV meds. – [Judd] What does it look
like, I’ve never seen it. Yeah, it’s weird. And Judd brought me
more clothes from home, we’re like accumulating a
pile of stuff over there. Judd complains about how much
stuff ends up in the hospital. – [Judd] We are taking
the dirty laundry home, and replace stuff as I bring it. – People were like, they
made a comment, like as you leave stuff here
take stuff with you, and I was like, yes take me with you. We can leave Harlow here, I’m sure they wouldn’t complain. The nurses love her,
and my doctors love her. – [Judd] Harlow wouldn’t
have no idea what’s going on. – The only issue, I would say, with the PICC line placement is, because of my EDS, like I said, I metabolize certain
medications very quickly. One of them is anesthetics
and local anesthesia does not work on me virtually at all. And they do numb this area,
so that was a little painful getting it put in, but with the Versed I was kept calm, and now it’s just a little sore at the insertion site. Other than that I think
it’ll be a good tool for the rest of the hospital stay. I’m not happy I need it,
but I’m glad its available to make my stay here more
comfortable and practical. So another reason I initially
went with a port over a PICC, and why I prefer ports, is because I can do all of my
own care regarding my port, and with the PICC obviously
it’s on my arm here. I can’t do the weekly dressing
changes with one hand. You need help, and this
white thing is this dressing from Tegaderm that I
put at the bottom here to secure the bottom of the Tegaderm, otherwise the line here pulls up the– See, I don’t have enough hands. If I don’t secure the bottom here well, it like pulls this up, and
if it pulls up too much it can break the sterile seal. So Judd’s gonna help me put
that on there and secure it. And I actually buy these
white things online, and I’ll put a link to where I buy them in the description if anyone’s interested, ’cause they’ve been great for my port, and I’m sure they may help people with other types of central
lines and dressings. (package crinkling) Ta-da! Now it is nice and super secure,
the bottom won’t fray up. – [Judd] This is Jaq’s antibiotic – It’s infusing. They decided to just
hook it up to my port, cause I haven’t de accessed yet, and then this is extension
tubing for the PICC, so I can reach it also. And then the order for heparin
will go in later tonight. You gotta hep lock the port, and that’s like a blood thinner, to keep the port patent
when it’s not in use. We’ll de access, and then we will solely be using the PICC line, and
they said TPN will start at– Why is that hard for me? TPN at 10 p.m., TPN 10 p.m., it’s kinda like a tongue twister. Love you babe. What? – There’s gloves everywhere. (Jaquie laughs) Love you. – [Jaquie] Love you, too. I guess there’s gloves everywhere outside. Hippo, there’s a glove explosion. Thank you babe! – You’re welcome. – What did you get? – I got LongHorn’s
prime rib, mac n cheese, Caesar salad, and they
give you a loaf of bread. – Oh you got more bread? – Yeah. – Bread is good – So Jaquie’s gonna chow down on her soup. – I got soup. (laughs) He got me soup from
Olive Garden, and bread, so we are gonna enjoy our hospital– – And some stuffed mushrooms for me. – Oh, you got stuffed mushrooms? – No, you got stuffed mushrooms for me. – So you got stuffed mushrooms. – Yeah. – Okay. We are gonna enjoy our
hospital date night. – [Judd] Oh, we’re gonna
watch Bob’s Burgers. – Oh yeah, there’s new
episodes of Bob’s Burgers out, and we decided to wait to watch it tonight so we can watch it together – [Judd] I can’t get this thing open. Jesus Christ, it’s so hard to be healthy.
– Use your mew-scles. This salad is fighting him. (Judd and Jaquie laugh) – That’s why it’s hard to be healthy. – Date night was a success. I was like kinda bummed,
cause there’s no mini fridge in the room to keep my
soup, and then I remembered. I was like, oh, Judd can
bring me my leftovers and I can have a few more spoonfuls of my soup tomorrow, right babe? – Right. – And now of course
we’re gonna play Trouble. So my mom and I played yesterday and it kept going on and
on and on, and then I won. (Judd laughs) – Okay, well – You won last time, three
times in a row so let’s see. I got a six or a one,
so I got out of home, then Judd got a number,
he got a two and ate me. One or six, ho! Ahh, and I was like I need to film this ’cause it’ll be a great moment. (Judd and Jaquie laugh) Oh my gosh, babe you’re
turning me into a sore winner. I never used to be competitive. Maybe only with Trouble. (laughs) Is that a six? Oh, my gosh. – [Judd] Oh, please give me a three! – No. (Judd Sighs) Only with Trouble do I
get this competetive. That was a really close game, he had one more to go and I got in. – [Judd] Let’s see if
I would have won, no. – [Jaquie] Would you have, no. Well, that was a close
game babe, good job. Very good, Harlow, very cute. We should put the yellows on
the board to represent Harlow. – Nah, they’d get all slobbery. – [Jaquie] And then Ellie can be pink – [Judd] It’s green. – [Jaquie] I mean green. (laughs) Moment of truth. (popping) – [Judd] Damn it. – [Jaquie] You got like
the worst possible number. You needed a one. Oh, at least you didn’t eat me. Alright now we’re really in this – [Judd] Did I count that out right? One, two, three, four, five… – [Jaquie] Yeah, you did. I know you just wanna send me back home. – [Judd] Jaq is in a little
bit of pain so she gave up, but I kept on playing and I won! Hippo lapping up some snuggles
as if she doesn’t get enough. Well I miss her. I feel like I’m not getting
enough Hippo snuggles. (Judd laughs) I had fun with our date
night, and playing trouble and like all that excitement, but it’s like back to reality,
and just not feeling well. So I’m just gonna take it easy until… We’ve got like half an hour
before I hook up to TPN, and then night time
meds and going to sleep, and just hurting and not feeling well. But I’m here to be looked
after, right Hippo? I’m here to get better. Alrighty, y’all, so I rested a bit and they gave me some medicine. Feeling a little better. We also learned that my
potassium is low again. Despite treating it, it
just keeps going low. Anyways, we have started my TPN, and if this looks familiar,
that’s because it is. It’s basically the banana bags I do at home three times a week. Based off my blood work
it’s giving me the vitamins, electrolytes, minerals that I need. This is part of my TPN,
tomorrow I will be doing the other part, which is the lipids. And this does have potassium in it, but my levels keep going low, and they want to bring it
up and infuse it quickly, so I’m actually gonna be getting a few bags of just potassium. And that’s why I have the other lumen. One line is for the TPN and one is for the other stuff like my
antibiotics, the fluids, my medicine, and we’ll be putting the potassium through there too. And my PICC is actually a little bit sore at the insertion site. They said that’s normal. And some details about the placement I don’t think I told y’all, it was like a typical IR,
interventional radiology, room. I just laid on a table
with an x-ray above me, they used an ultrasound to find the vein, and then they cleaned it, they said there’s gonna be some pain when
they broke through the skin, and that was the most painful
part, wasn’t that bad. And they’re like, “You’re
gonna feel pressure” as they put the catheter
through, and that was it. From start to finish,
to get me in the room and set everything up and then finish it was like 30 minutes, but putting the PICC itself in
only took like five minutes. And then apparently taking
it out is super easy too, its just like, (whooshes) Like someone said it just feels like pulling a giant thing of
spaghetti out of your arm. I don’t know. – [Judd] Weird. – It probably will feel weird. That is my TPN officially started and PICC line officially in. And my port is actually
not de accessed yet. They’re gonna bring me some
heparin so I can hep lock it, and we’re not gonna be using it anymore, but they don’t want me to de access it without supervision from the IV team. We should have just done it
while I was with the IV team getting the PICC line placed today, but no big deal, we’ll
just de access it tomorrow. Do you see her, like just under? You’re just makin’ yourself comfy there. – Well we’re gonna call
it quits for the night. I’m going home, the hippo with me. Jaq’s staying here obviously. – But I’ll see y’all tomorrow. – Mm-hmm. – So with that we’ll say goodnight and thanks for joining
us on our adventure. (lively music)